Wednesday 24 February 2021

The Future of Neurodiversity

I'm afraid I don't have the gift of clairvoyance. When I look into my crystal ball, I see through the glass  darkly, very darkly.  And even more so in these times. Now pandemic, global warming, the rise of populism and the decline of what we called "Western Civilization", in all its horror and glory,  point to a future of socio-economic upheaval and uncertainty. History teaches us that in such times the dominant majority, and those who indentify with it, will turn against minorities and seek to eliminate them. 

The best advice in such times is to expect the best, but prepare for the worst. 

It will require courage to stand up for minorities - not just our own, but that of others, because divided we must beg but united we can bargain. 

And it will require us to work together. By "work" I'm not just referring to "paid work" though it is good to have if you can get it. But I will venture a prediction that paid work will be harder to get for more and more people, while employment terms and conditions will deteriorate. 

Instead, I'm talking about real work in the service of the future of humanity, not “busy work” as commercial and industrial conscripts goaded by the carrot of consumer goodies and the stick of a punitive “welfare” system. 

Don't  buy in to the belief that the possession of  paid work, no matter what the terms and conditions, is inherently a virtue. See also my awkwardly but meaningfully titled piece,  Is Paid-workliness Next to Godliness?

Work is not a virtue when our labour is used to pollute the planet for the sake of producing consumer junk for people in a state of perpetual dissatisfaction and desire due to the meaninglessness of their working lives.

And as for the Zero Sum Game of substituting an occasional autistic coder to replace a non-autistic coder in a shrinking employment market, think: 

Playing Musical Deckchairs on the Titanic 

Musical chairs game sinking couldn't find an image of the Titanic

So here's what I think are the most important aims that the Neurodiversity Movement can have, beyond the core goals of advocacy for recognition and respect for human variation 

  • the recocnitiongof  neurodiversity as a necessity for cultural sustainability, in the same way that biodiversity is a necessity for ecosystem sustainability
Going into an uncertain future, I advocate joining movements who are working towards
  • A living UBI - Universal Basic Income (see pilot results from Finland)
  • An end to the vilification of Unemployed People, and who wouldn't like to bet that a high proportion of them are Neurodivergent? 
  • Investment in public housing
  • Investment in Health
  • Investment in Inclusionary Education... 
You know you want it! Especially an UBI. It used to be a fringe idea. Now it's going mainstream. 

But, you cry, "How are "we" to pay for it?"

That's a political issue - you get what you fight for. NeuroMinorities when lobbying together, are a big voting bloc!

Image 1: Globe as Crystal Ball by Gerd Altman on Pixabay
Image 2: Downsizing Musical Chairs, adapted by JSinger

Sunday 21 February 2021

Neurodiversity: It's politics, not science!

... or ...

It's the name of a social justice movement, not a diagnosis

You may have heard critics of the Neurodiversity paradigm dismiss it with "It's not even scientific" or "It's pseudoscience". 

Of course it isn’t. It's not meant to be. 

Neurodiversity simply names a biological truism, a self-evident fact that adds nothing to what we already know about the world.  You don't need a cross-disciplinary PhD in a brace of "~ologies" to figure out that every human brain on the planet is as unique as each fingerprint. It follows that there is a virtually infinite diversity of humans on the planet, with infinitely diverse minds complexified further by experience in equally diverse bodies. 

A scientific investigation of Neurodiversity would have to find two individuals on the planet whose minds are exactly alike. Identical twins? As soon as one infant looks to the left and sees something that the other doesn't, their minds being to diverge. Neurodiversity is a not a scientific concept because it cannot be tested or falsified, though what a dream job it would be to get a grant to travel the world analysing each brain to get a perfect match. Y

es, you can have genetic matches, but not if you factor in culture and experience

And secondly, having been blessed, or cursed, with a highy systematizing (!) sociologizing brain,  my intent was political, unifying and liberatory, not divisively intent on putting individuals "under a microscope".

By political, I mean the combative process by which organized groups in societies make decisions about how to allocate resources, power, and status. 

Members of Neurological minorities, whether diagnostically labelled or not,  have generally been been discriminated against: denied resources, disempowered, and devalued from school through life trajectory and work career, which affects our standard of living unless we are lucky enough to be born into a well-to-do family. This must change. Thus our fight for recognition and a fair share of resources, influence, and status is a political fight. And to have the political clout we need to organize ourselves. 

The Dialectics of Neurodiversity
The Dialectics of
Click to enlarge

That is how the Neurodiversity movement began. First it needed a catchy name, a banner to gather under. And then the people came and fleshed out the agenda for change. And then as people always do, they disagreed on this and that,  polarised, debated, and sometimes even trolled each other, and a consensus began to evolve, with extremist views acting as a delimiter. And that is how politics is, and how the world changes by what is called a dialectical process 

To this end, instinctively - albeit semi-consciously, as I never imagined how this would actually take off  decades later - I came up with the word "Neurodiversity" for two specific political functions

·         to add a necessary new category to what is now called "Intersectionality".

·       to suggest an umbrella term for an emerging social/political movement based on the pioneering work of the Autistic Self-Advocacy Movement. It had become clear that ASA movement's paradigm was beginning to be adopted by other Neurotribes who had different diagnostic labels but common issues of exclusion

To be clear, this is how I first used the word "Neurodiversity", this and nothing else. 

That’s all.

Neurodiversity is a conjoined word which trades on two of the era-defining developments of 20th century science

·       the ascendency of Neuroscience, the "hard" science of the physical brain, - with pictorial proof yet - over Psychology, the study of that elusive substance, the Psyche

·       the rise of environmental science, from which emerged, in the 1980s, the term Biodiversity, another truism, coined expressly as an argument for the conservation of the species

The intention was to sound authoritative based on the combined heft of neuroscience and environmental science, not to be scientific.

The word Neurodiversity could be called a Koan – it caught on because it delivers an instant Aha! moment to so many of us. We hear it, we know it, it fits our times and for many of us, names our struggles. But the word is perhaps an exercise in consciousness that begs a question: Now that we have foregrounded the uniqueness of each human mind, 

“What is humanity going to do about it”?

What humanity has "done about it" depends on the cultures we have been born into. And our diversity of human cultures have, needless to say, dealt with it in their own diverse ways. 

Although I majored in Anthropology, I daren't make pronouncements about other cultures, other than to state that, from what I have learned so far, there are no utopias out there, not even amongst the remaining hunter-gatherer that some idealist romantics would still like to exalt to the status of "Noble Savages". Like individuals, the cultures we create have their strengths and weaknesses, winners and losers, as delimited by their available natural resources, of which, significantly, famine was the ultimate delimiter. 

Instead I will confine my observations to what I know best, our Dominant Patriarchal Western Christian Civilization.  (DPWCC). Armed with this conglomerations of beliefs, DPWCCs conquered most of the world over the past millenium, enslaving other peoples, including their own women and amassing massive fortunes as a result.

DPWCC is a mouthful. Let's call this obviously life-threatening (to others)  psychologically diseased constellation "Capitalist Syndrome". 

But like every other labelled disability, Capitalist Syndrome has its strengths and weaknesses  

Weaknesses: an  exploitative juggernaut which worships "The Market", "The Workplace"  and its High Church "The Mall" like we once worshipped our Father-God. It concentrates inequality and turns molehills of inequality into mountains that few can climb, that keeps everyone on a constant treadmill of anxious striving to outpace everyone else, lest we fall into the abyss of poverty and shame. 

Strengths: it has delivered the preconditions for an egalitarian society, at least for its members: freedom of thought, freedom of speech, freedom of movement, and freedom from famine. There is now in principle enough for the inclusion of everyone to extend to the other necessities of life. 

Nevertheless, this monoculture is gradually being diversified and its autocratic hold weakened by various factors. These include: 

  • transfers of wealth and populations by globalization, including the movement of formerly colonized people back into the lands of their colonizers
  • the post-war human rights movement that emerged as a reaction tp the horrors of the Nazi eugenicist extermination camps, based on the psueudoscience of race, and which led to the Universal Declaration of Human Rights 
  • the emergence of one minority movement after another demanding civil rights pioneered by African Americans Americans, Women, and Gays etc.

And this is where the Neurodiversity came in. By the end of the 20th century, Westerners had been forced by the first intersectionalist movements to question their ingrained beliefs about the inferiority of black and indigenous people and women and the criminality of homosexuality.  

These movements had made it generally unacceptable for civilized people to air derogatory opinions about the above minorities. But it was still open season on "nerds", aka Aspies  -  as we learned to call ourselves. One of the triggers for me to start thinking about Neurodiversity included the film "Grease" in which it seemed perfectly normal, natural and unremarkable that the the nerdy character Eugene, should was bullied by the gang, who were assumed to have "hearts of gold". And this is par for the course for so many other films with the obligatory nerd character humiliated for the hilarity of the crowd. 

That is partly why I wanted to add Neurodiversity to Intersectionality, so that the mistreatment of neurological outsiders could no longer be casually overlooked.

Politics and Intersectionality

Broadly speaking, politics is the process by which societies make decisions about how to distribute resources, with status, power and wealth accruing to those who are best placed to control the resources. 

Without going into the history of why society began to classify people according to their neurological profiles, and punishing some 

Despite the complaints of angry conservative outrage-manufacturers, intersectionality is a tool of social analysis that is increasingly used by policy makers.  out of the recognition that as nations we must come to terms with the reality that we are no longer a monoculture, and must learn to understand each other's backgrounds and learn to get along. 

It's important to notice that the categories of intersectionality:  Age, Class, Ethnicity, Gender, Religion,  Sex, Disability, are devoid of rank or judgment, except for "disability", which only goes to show how much disability is still considered a second class category.  The correct term should be of course ABILITY

We all have socio-economic class, we are all ethnic, we are all gendered etc, we all have abilities Yet all of of these categories have been used to classify, grade, rank, disempower and impoverish people. That is what makes these categories political, as per the definition on the right. 

Politics and the unequal distribution of resources

While our culture is nominally still Christian, notice that the political “Right” who tend to be the most vociferous about their allegiance to Christianity, act according to the tenets of “jungle law”. They preach Christianity, but their practices of Neoliberalism support Darwin’s survival of the fittest. Market law makes clear that those who are unfit or unproductive within Neoliberalism’s limited ideas of productivity deserve what the get, and should be grateful for  the meagre pensions doled out to them.

And this is where Politics come in:

In the broadest sense, politics is about the distribution of resources and in our society that is massive inequity. There is still a long way to go.

I know the explicitly political nature of these terms can make the dominant majority uncomfortable, if they want to frame the issue in medical or commercial terms, whether for the financial and/or status benefits of expertise. And who can blame them? We live in a stratified social order, and must needs struggle to retain our place.  But discomfort is part of social change. Thanks to globalisation, and how the colonized nations have come back to bite those who benefitted from colonization, there are no more Anglo monocultures, and never will be. That is why intersectionality manifested. We need to learn how to get along. 

This is not to say that there’s no such thing as disability, or no role for helping professionals. 

Difference shades into disability depending on the amount of help required by individuals and their families. We do not want to go back to a world where (primarily) women had to give up their own dreams  because there was no help or advice available for them as carers. We still have a long way to go, when we see that mysogyny has recast Refrigerator Mothers into “Autism Moms” if they shd show a reluctance to acquiesce to the roles assigned to them whether by medical authority or the Twitter mob. It takes a village to raise any child, and more so if the child is developmentally more labour intensive

Take Home Lesson: ND is not a classificatory term dividing us from them. We are all Neurodiverse. We live on a Neurodiverse planet in which amoral nature generates endless genetic diversity, while we humans have evolved the capacity to make judgments about nature’s bounty. What Neurodiversity brings us is a challenge to find a place for everyone and to distribute the bounty fairly.