Blume? Singer? Or Turtles all the way down?
Spoiler: It really was me!
I begin on a far from trivial correction:
The Sage 6 are hardly “International” scholars.
(American + British) does not add up to “Internationality” |
Quite an over reach, especially when the appear to have been unable to shake off the ingrained habits of British Colonialism and USA Cultural Imperialism
The 6 contenders rely
heavily on two shaky platforms:
- The, dare I say, resentful “evidence” of a non-scholar Martijn Dekker whose ignorance of academic process in the social sciences should be glaringly obvious to any academic. For Dekker's information, every academic thesis undergoes a comprehensive ethics review before acceptance. I have rebutted Dekker’s absurd confabulations here
- A lot of freewheeling assumptions about the role of American freelance journalist Harvey Blume in the development of the term Neurodiversity, all of which can be traced back to the work of Wikipedia’s amateur “editors”
I would hope the 6 academics have not been relying on Wikipedia's nameless and self-appointed northern "editors" given their dubious qualifications - assuming they even have any. Wikipedia’s scandal-snorting amateurs have been playing around with my entries for going on 3 decades now. I long ago gave up trying to set the record straight with them.
I cannot help wondering if it is completely beyond Wikipedia's amateur so-called "editors" to imagine that someone who is neither American nor Male can nevertheless be capable of coming up with a "Big Idea" all by ourselves!
Click to enlarge if not familiar with the term |
Reflexivity
Harvey Blume
If the authors had shown even a modicum of common sense, they might have made some pertinent enquiries. They might have found out that I corresponded with Harvey Blume for many years from 1997 onwards. Indeed I believe I shared this information years ago with Chapman. I have retained my correspondence with Blume, which shows, unsurprisingly, that he knew nothing about disability politics or the Social Model of Disability and learned the term "neurodiversity" from me. He wrote about it once or twice and never again. He did not cite me, nor as an op-ed writer did he need to. It didn't bother me in the least at the time, because who knew that 20 years later, the Neurodiversity movement I wanted to promote would actually go viral. Transcript of correspondence with Blume in which I mention Neurodiversity prior to his being |
Where I said ''that I'm sure I coined Neurodiversity'' I also stated that the concept was probably''in the air'' aka the zeitgeist. I said the same thing in my thesis. All paradigm shifting ideas arise from the zeitgeist, but it takes a theorist to name, explicate and analyse them first. But I wasn't about to bignote myself then - nor did I ever dream that my idea would 'take off'. I make no apologies. I hope my contenders will not seize upon my reticence as they seized on a conversation I had with Jane Meyerding when I asked her if she had ever heard the term Neurodiversity. I asked her because she had been in the USA mainstream of the Autistic Self-Advocacy Movement long before me. I didn't want to claim the coinage until I was absolutely sure that the word didnt exist. I had exhausted all the resources of university libraries, the internet and never found it. Jane confirmed she had never come across it, which left me free to use and interpret it in my thesis. Notice that my defamers interpreted my correspondence with Jane in a twisted and mean-spirited way
Meanwhile, the development of this concept was my life's work, born out of great family hardship and struggle and my fortuitous discovery of Disability Studies. And it was NOT written just for the sake of catharsis, but also because I didn't want other families affected by Autism to have to endure the same.
Nor do journalistic ethics or the laws of defamation appear to daunt the Wikipedia crew. whose hogwash has been lapped up by my academic rivals. Hardly surprising, since they well know that defamation cases can only be afforded by corporations and billionaire
Envy
The final absurdity
Unless further archival evidence comes to light, it is possible we will never know who coined the term ‘neurodiversity’.
And finally, a useful lesson from our ancient sages
tho I was forced to adapt it as below
_______________________________________________________
Bibliography
The Provenance of the Neurodiversity ConceptJudy Singer
*Thesis
Singer, J. (1998).
Odd People In: The Birth of Community Amongst People on the “Autistic
Spectrum”: a personal exploration of a New Social Movement based on Neurological
Diversity. A thesis presented to the faculty of Humanities and Social Sciences
in partial fulfilment of the requirements for the degree of Bachelor of Arts
Social Science (Honours), Faculty of Humanities and Social Science, University
of Technology, Sydney, 1998. Submitted September 1998.
Book
Singer, J. (2016) NeuroDiversity: The birth of an idea. Kindle https://www.amazon.com/NeuroDiversity-Birth-Idea-Judy-Singer-ebook/dp/B01HY0QTEE/
Book Chapters
Singer, J. (1999). Why can't you be
normal for once in your life?: From a 'Problem with No Name' to a new category
of disability. In Corker, M. and French, S. (Eds.). Disability Discourse Open
University Press UK https://www.worldcat.org/title/disability-discourse/oclc/39182312
Singer, J. (2002). When Cassandra was
very very young. In Rodman, K. (Ed.) (2002) Is anybody listening?
Jessica Kingsley Publishers, UK
Singer, J. (2003). Preface: Travels in Parallel
Space: An Invitation. In Miller, J. K. (ed). Women from Another Planet? Our
Lives in the Universe of Autism 1stBooks Library, New York
Government Publication
Singer, J. (2000). Disability
Employment Services Information Kit. Department of Family and Community Services,
Australian Government publication (Comprises 8 illustrated booklets, half in
Easy English and half in Pictorial English, fact sheets and posters. 50,000
copies in print, distributed to every Disability Employment Service office in
Australia)
Academic papers
Singer, J. (1999). No Longer Fair
Game: Human Rights for Nerds, Weirdoes and Oddballs: The current situation of
people with Autistic Spectrum Disorders in the NSW education system. A paper
given at the 1999 Conference on Human Rights, Disability, and Education at the
University of NSW.
Singer, J. (1999). Uncovering the
Neurological Procrustean Bed. A paper given to the "Sydney Disability
Research Network". University of Technology, Sydney
Singer, J. (1999). Voice and
“Neurological Difference”. A seminar
paper given to the "Sydney Disability Research Network" UTS
Satirical Pieces
Singer, J. (1998) NT Social Skills
Deficiencies: A case study available archived online by Eric Engdahl at The
Institute for the Study of the Neurologically Typical https://erikengdahl.se/autism/isnt/
Singer, J. (1998) What to do if you suspect
your child has NT available archived online by Eric Engdahl at The
Institute for the Study of the Neurologically Typical https://erikengdahl.se/autism/isnt/
Debut Appearance of the Word “Neurodiversity”
Singer, J (1997) Mentioned by Judy Singer in private email to Harvey Blume. Correspondence archived, pictured above.
Blume, H (1998) On
the Neurological Underpinnings of Geekdom The Atlantic Monthly: September
1998
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